Family Care in HIV/AIDS
Exploring Lived Experience
- Premilla D'Cruz - Indian Institute of Management, Ahmedabad, India
Overall, the book provides valuable insights into a range of important issues related to caregiving in family settings while identifying areas for intervention and further research. In addition, it overcomes many gaps identified in the substantive area of family care by Western researchers.
"Through provocative narratives, she depicts the voice of the lifeworld, providing language to articulate the meaning of the contextual and familial experience of illness and the private meaning of the caregiver role. D'Cruz brings the realities on the human experience of caring for HIV positive individuals to life and provides stories that challenge the reader to consider explanations for the layers of change in roles and relationships during the progression of the illness. The narratives in the text give meaning and intelligibility to the experience of being either a caregiver or care receiver, and they portray how women caregivers' lives have been made invisible and their voices silenced."