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Researching Health Together

Researching Health Together
Engaging Patients and Stakeholders from Topic Identification to Policy Change

Edited by:

April 2020 | 424 pages | SAGE Publications, Inc

The challenges of addressing health disparities, the ethical imperative to include stakeholders in research, and the slow translation of research evidence into practice are all driving a movement towards more community-based and participatory approaches to research. Researching Health Together brings together authors who have produced innovative methodologies or demonstration projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter address: how engagement was conceptualized, organized, and implemented; how engagement was evaluated; impacts on processes and outcomes of the project; facilitators and barriers; and a critical review of the engagement. The book serves as a core textbook for courses in community-based health research at the MPH level.

Joe Selby
Emily Zimmerman, Thomas Concannon
Engaging Patients and Stakeholders in Health Research: An Introduction
About the Editor
Part I: Stakeholder Engagement in Research Topic Identification and Modeling
Ann Cheney, Christina Reaves, J Sullivan
1. Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities
Susan Dorr Goold, Zachary Rowe, Karen Calhoun
2. Deliberative Engagement of Communities in Decisions about Research Spending (DECIDERS)
Faustine Williams, Peter Hovmand, Kurt Stange
3. Group Model Building as a Community Engagement Strategy
Emily Zimmerman, Sarah Cook
4. The SEED Method: A Multi-level Stakeholder Approach to Research Question Development and Prioritization
Part II: Stakeholder Engagement in Research Design
Yvonne Joosten, Tiffany Israel, Consuelo Wilkins, Leah Dunkel, Jacqueline Sims
5. The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research
Kimberly Marschhauser, Maryan Zirkle, Claudia Grossman
6. The History of PCORnet
Marleah Dean, Sue Friedman, Rebecca Sutphen, Elizabeth Bourquardez Clark, Debra Duquette, Lisa Rezende
7. Partners, Not Participants: Engaging Patients in the American BRCA Outcomes of Testing (ABOUT) Network
Alex H. Krist, B. Paulette Lail Kashiri, J. Eric Peele, Gary Iwamoto, Colin Banas, Jon Puro
8. Engagement Methods for Practice-Based Research Networks and the Challenges with Health Information Technology Implementation
Part III: Implementing Stakeholder-Engaged Research
John Westfall, Maret Felzien, Linda Zittleman, Ashley Espinoza
9. Free Range Humans: Engaging Patients, Practices, Provides, and People on the High Plains
Annette Boaz, Allison Metz
10. Engaging Stakeholders in Implementation of Evidence-Based Programs
Payam Sheikhattari, Jummai Apata, Laurie Bezold, Lisa Bleich, Fernando A. Wagner
11. Communities Engaged and Advocating for Smoke-Free Environments (CEASE)
Roberto Vargas, Casey Palmer, James Iniguez, Paula Fleisher, Christina Goette, Brittni Chicuata, Sarah Fine, Eric Mar, Laura Schmidt
12. Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax
Part IV: Stakeholder Engagement in Health and Health Systems Interventions
Kelly Williams, Tracy Carney, Jane Kogan, James Schuster
13. Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective
L. Boulware, Patti Ephraim, Teri Browne, Tara Strigo, Felicia Hill-Briggs, Jamie Green, Chelsie Hauer
14. Achieving Patient Centered Health Care Innovation Through Stakeholder Engagement
Lisa G. Rosas Jan J. Vasquez Jill Evans Rhonda McClinton-Brown Alberto Ojeda Matilda Owaleon-Ojeda Wayne Water Robert W. Garcia
15. Community Engagement in an Urban AIAN Community to Address Diabetes Prevention
Linda Zittleman, Ashley Espinoza, John Westfall
16. Boot Camp Translation
Part V: Governance, Evaluation, And Ethics In Stakeholder-Engaged Research
Holly L. Peay, Elizabeth L. Cope, Elizabeth Horn, Madelaine E. Faulkner, Thomas W. Carton, Megan O'Boyle, Lorraine B. Johnson
17. Building the Proper Foundation: Governance for Stakeholder-Engaged Research
Thomas Concannon
18. Evaluating Engagement: Does the involvement of stakeholders improve research?
Michelle Brodesky, Karen Errichetti, M. Marlen Ramirez, San Juana Martinez-Gomez, Stephanie A. Tapia
19. Collaborating to Evaluate: The Sí Texas Partnership-Centered Evaluation Model
Donald Willison, Michael McDonald
20. Ethics considerations when involving patients and the public in health research

An important text presenting the interface between community engagement and translational research. Well-researched and written chapters packed with up to date and revealing information on an important topic. 

Lutchmie Narine
Syracuse University

This is an impressive, comprehensive, and up-to-date volume on community engagement in health research. Drawing upon diverse conceptual models and empirical case studies, this book offers exciting, cutting-edge ideas in this rapidly growing field. A must-have for researchers and practitioners. 

Jennifer Chan
University of British Columbia

The book provides a coherent narrative through a progression of "building blocks" for understanding how research and policies can interface to benefit the quality of life of individuals and entire communities. 

Marcello Maviglia
University of Michigan

This book is an amazing compendium of current methods for improving stakeholder engagement in research. Here readers can see different strategies working in different populations, for their own use. 

Deborah J. Bowen
University of Washington

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ISBN: 9781544351063