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Family Care in HIV/AIDS

Family Care in HIV/AIDS
Exploring Lived Experience

First Edition

June 2004 | 218 pages | SAGE India
This book vividly describes family care in HIV/AIDS through the lived experiences of caregivers and care receivers. It contributes to our knowledge not only because of the contemporary relevance of family caregiving, but also because of its focus on HIV/AIDS which, being a relatively new disease, is little understood yet poses unique challenges due to its stigmatising, long-drawn, debilitating and terminal nature. Based on a study conducted in Mumbai, Family Care in HIV/AIDS captures the lived experiences of 10 caregivers and seven care receivers belonging to diverse socio-economic groups and traditional as well as non-traditional family settings.

Overall, the book provides valuable insights into a range of important issues related to caregiving in family settings while identifying areas for intervention and further research. In addition, it overcomes many gaps identified in the substantive area of family care by Western researchers.

The Dynamics of Family Care

HIV/AIDS and Family Care
Contextualizing the Study
Losing Autonomy and Redefining Family Relationships
Struggling to Prolong Life
Preserving Family and Learning Whom to Count on
The Way Forward

"Through provocative narratives, she depicts the voice of the lifeworld, providing language to articulate the meaning of the contextual and familial experience of illness and the private meaning of the caregiver role. D'Cruz brings the realities on the human experience of caring for HIV positive individuals to life and provides stories that challenge the reader to consider explanations for the layers of change in roles and relationships during the progression of the illness. The narratives in the text give meaning and intelligibility to the experience of being either a caregiver or care receiver, and they portray how women caregivers' lives have been made invisible and their voices silenced."

Ashley Duggan
Boston College

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ISBN: 9780761932338